{"id":126,"date":"2026-09-22T13:05:48","date_gmt":"2026-09-22T13:05:48","guid":{"rendered":"https:\/\/funny-fermi.104-248-174-66.plesk.page\/?page_id=126"},"modified":"2026-10-30T10:53:28","modified_gmt":"2026-10-30T10:53:28","slug":"disease-info","status":"publish","type":"page","link":"https:\/\/funny-fermi.104-248-174-66.plesk.page\/fr\/disease-info\/","title":{"rendered":"Disease Info"},"content":{"rendered":"<main id='oxy-main'><div class=\"oxy-container-126-307 oxy-container od-page-disease-info\"><div class=\"oxy-container-126-306 oxy-container od-fx-793346c73\"><div class=\"oxy-container-126-313 oxy-container od-products-notice-wrap\"><aside class=\"oxy-container-126-312 oxy-container od-products-notice\" aria-labelledby=\"education-notice-title\"><div class=\"oxy-svg-icon2-126-308 oxy-svg-icon2 od-products-notice-icon\">\n<svg aria-hidden=\"true\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewBox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"2\" stroke-linecap=\"round\" stroke-linejoin=\"round\"><path d=\"M16 21v-2a4 4 0 0 0-4-4H6a4 4 0 0 0-4 4v2\"><\/path><circle cx=\"9\" cy=\"7\" r=\"4\"><\/circle><path d=\"M22 21v-2a4 4 0 0 0-3-3.87\"><\/path><path d=\"M16 3.13a4 4 0 0 1 0 7.75\"><\/path><\/svg>\n<\/div><div class=\"oxy-container-126-311 oxy-container od-products-notice-copy\"><h2 class=\"oxy-text-126-309 oxy-text od-products-notice-title\" id=\"education-notice-title\">\nFor Patients and Caregivers\n<\/h2><p class=\"oxy-text-126-310 oxy-text od-products-notice-body\">\nThis information is intended for patients and caregivers. Always consult with your healthcare provider about your specific medical condition and treatment options. Do not start, stop or change any treatment without first consulting your doctor.\n<\/p><\/div><\/aside><\/div><section class=\"oxy-container-126-326 oxy-container od-hero\" aria-labelledby=\"education-title\"><div class=\"oxy-container-126-325 oxy-container od-container\"><div class=\"oxy-container-126-316 oxy-container od-hero-heading\"><div class=\"oxy-svg-icon2-126-314 oxy-svg-icon2 od-hero-icon od-education-hero-icon\">\n<svg aria-hidden=\"true\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewBox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"2\" stroke-linecap=\"round\" stroke-linejoin=\"round\"><path d=\"M12 7v14\"><\/path><path d=\"M3 18a1 1 0 0 1-1-1V4a1 1 0 0 1 1-1h5a4 4 0 0 1 4 4 4 4 0 0 1 4-4h5a1 1 0 0 1 1 1v13a1 1 0 0 1-1 1h-6a3 3 0 0 0-3 3 3 3 0 0 0-3-3z\"><\/path><\/svg>\n<\/div><h1 class=\"oxy-text-126-315 oxy-text od-hero-title\" id=\"education-title\">\nRare Disease Education\n<\/h1><\/div><p class=\"oxy-text-126-317 oxy-text od-hero-lead\">\nUnderstanding rare diseases and supporting patients\n<\/p><p class=\"oxy-text-126-318 oxy-text od-hero-copy\">\nAccess educational resources, disease information and external support networks for patients and caregivers navigating rare conditions.\n<\/p><div class=\"oxy-container-126-321 oxy-container od-hero-actions\"><a class=\"oxy-text-link-126-319 oxy-text-link od-button od-button--accent od-button--borderless\" href=\"\/patient-support-groups\/\" target=\"_self\">\nFind Support Groups\n<\/a><a class=\"oxy-text-link-126-320 oxy-text-link od-button od-button--outlined-light\" href=\"\/safety-information\/\" target=\"_self\">\nSafety Information\n<\/a><\/div><button class=\"oxy-container-link-126-324 oxy-container-link od-hero-back od-education-back\" target=\"_self\" data-interactions=\"[{&quot;trigger&quot;:&quot;click&quot;,&quot;prevent_default&quot;:true,&quot;actions&quot;:[{&quot;name&quot;:&quot;javascript_function&quot;,&quot;js_function_name&quot;:&quot;orphalanHeroBack&quot;}]}]\" id=\"education-back\" type=\"button\" aria-label=\"Go back to the previous page\"><div class=\"oxy-svg-icon2-126-322 oxy-svg-icon2 od-hero-back-icon\">\n<svg aria-hidden=\"true\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewBox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"2\" stroke-linecap=\"round\" stroke-linejoin=\"round\"><path d=\"m15 18-6-6 6-6\"><\/path><\/svg>\n<\/div><span class=\"oxy-text-126-323 oxy-text od-link-label\">\nBack\n<\/span><\/button><\/div><\/section><section class=\"oxy-container-126-412 oxy-container od-section\" aria-labelledby=\"education-understanding-title\"><div class=\"oxy-container-126-411 oxy-container od-container\"><header class=\"oxy-container-126-330 oxy-container od-home-heading\"><span class=\"oxy-text-126-327 oxy-text od-eyebrow\">\nWE CARE\n<\/span><h2 class=\"oxy-text-126-328 oxy-text od-home-heading-title\" id=\"education-understanding-title\">\nWhat Makes a Disease \"Rare\"?\n<\/h2><p class=\"oxy-text-126-329 oxy-text od-home-heading-lead\">\nA rare disease diagnosis can feel isolating, but resources, information and support networks are available for patients and families.\n<\/p><\/header><div class=\"oxy-container-126-410 oxy-container od-education-content\"><div class=\"oxy-container-126-339 oxy-container od-education-definition-grid od-education-block\"><div class=\"oxy-container-126-334 oxy-container od-education-definition-copy\"><div class=\"oxy-container-126-331 oxy-container od-section-marker\" aria-hidden=\"true\"><\/div><h3 class=\"oxy-text-126-332 oxy-text od-card-title od-education-definition-title\">\nThe Definition\n<\/h3><p class=\"oxy-text-126-333 oxy-text od-body\">\nA disease is considered rare when it affects fewer than 1 in 2,000 people. While each individual rare disease affects a small number of people, there are more than 7,000 known rare diseases - which means collectively, they touch the lives of millions.\n<\/p><\/div><aside class=\"oxy-container-126-338 oxy-container od-education-global-stat\"><div class=\"oxy-svg-icon2-126-335 oxy-svg-icon2 od-education-global-icon\">\n<svg aria-hidden=\"true\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewBox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"2\" stroke-linecap=\"round\" stroke-linejoin=\"round\"><circle cx=\"12\" cy=\"12\" r=\"10\"><\/circle><path d=\"M12 2a14.5 14.5 0 0 0 0 20 14.5 14.5 0 0 0 0-20\"><\/path><path d=\"M2 12h20\"><\/path><\/svg>\n<\/div><p class=\"oxy-text-126-336 oxy-text od-education-global-number\">\n300M+\n<\/p><p class=\"oxy-text-126-337 oxy-text od-body\">\nPeople worldwide are living with a rare disease - more than the entire population of the United States.\n<\/p><\/aside><\/div><div 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fill=\"#60b7c7\"><\/path><\/g><g opacity=\"0.2\"><circle cx=\"234\" cy=\"155.5\" r=\"3.5\" fill=\"#60b7c7\"><\/circle><path d=\"M229 161 Q229 159 234 159 Q239 159 239 161 L239 166 Q239 167 234 167 Q229 167 229 166 Z\" fill=\"#60b7c7\"><\/path><\/g><g opacity=\"0.2\"><circle cx=\"256\" cy=\"155.5\" r=\"3.5\" fill=\"#60b7c7\"><\/circle><path d=\"M251 161 Q251 159 256 159 Q261 159 261 161 L261 166 Q261 167 256 167 Q251 167 251 166 Z\" fill=\"#60b7c7\"><\/path><\/g><g opacity=\"0.2\"><circle cx=\"278\" cy=\"155.5\" r=\"3.5\" fill=\"#60b7c7\"><\/circle><path d=\"M273 161 Q273 159 278 159 Q283 159 283 161 L283 166 Q283 167 278 167 Q273 167 273 166 Z\" fill=\"#60b7c7\"><\/path><\/g><g opacity=\"0.2\"><circle cx=\"300\" cy=\"155.5\" r=\"3.5\" fill=\"#60b7c7\"><\/circle><path d=\"M295 161 Q295 159 300 159 Q305 159 305 161 L305 166 Q305 167 300 167 Q295 167 295 166 Z\" fill=\"#60b7c7\"><\/path><\/g><g opacity=\"0.2\"><circle cx=\"322\" cy=\"155.5\" r=\"3.5\" fill=\"#60b7c7\"><\/circle><path d=\"M317 161 Q317 159 322 159 Q327 159 327 161 L327 166 Q327 167 322 167 Q317 167 317 166 Z\" fill=\"#60b7c7\"><\/path><\/g><g opacity=\"0.2\"><circle cx=\"344\" cy=\"155.5\" r=\"3.5\" fill=\"#60b7c7\"><\/circle><path d=\"M339 161 Q339 159 344 159 Q349 159 349 161 L349 166 Q349 167 344 167 Q339 167 339 166 Z\" fill=\"#60b7c7\"><\/path><\/g><g opacity=\"0.2\"><circle cx=\"366\" cy=\"155.5\" r=\"3.5\" fill=\"#60b7c7\"><\/circle><path d=\"M361 161 Q361 159 366 159 Q371 159 371 161 L371 166 Q371 167 366 167 Q361 167 361 166 Z\" fill=\"#60b7c7\"><\/path><\/g><g opacity=\"0.2\"><circle cx=\"388\" cy=\"155.5\" r=\"3.5\" fill=\"#60b7c7\"><\/circle><path d=\"M383 161 Q383 159 388 159 Q393 159 393 161 L393 166 Q393 167 388 167 Q383 167 383 166 Z\" fill=\"#60b7c7\"><\/path><\/g><g opacity=\"0.2\"><circle cx=\"410\" cy=\"155.5\" r=\"3.5\" fill=\"#60b7c7\"><\/circle><path d=\"M405 161 Q405 159 410 159 Q415 159 415 161 L415 166 Q415 167 410 167 Q405 167 405 166 Z\" fill=\"#60b7c7\"><\/path><\/g><g opacity=\"0.2\"><circle cx=\"432\" cy=\"155.5\" r=\"3.5\" fill=\"#60b7c7\"><\/circle><path d=\"M427 161 Q427 159 432 159 Q437 159 437 161 L437 166 Q437 167 432 167 Q427 167 427 166 Z\" fill=\"#60b7c7\"><\/path><\/g><line x1=\"212\" y1=\"65\" x2=\"296\" y2=\"118\" stroke=\"#723f91\" stroke-width=\"1.5\" stroke-dasharray=\"4,3\" opacity=\"0.65\"><\/line><rect x=\"294\" y=\"108\" width=\"170\" height=\"66\" rx=\"10\" fill=\"white\" stroke=\"#723f91\" stroke-width=\"1.5\"><\/rect><g opacity=\"1\"><circle cx=\"318\" cy=\"122.35000000000001\" r=\"4.55\" fill=\"#723f91\"><\/circle><path d=\"M311.5 128.9 Q311.5 126.9 318 126.9 Q324.5 126.9 324.5 128.9 L324.5 136 Q324.5 137 318 137 Q311.5 137 311.5 136 Z\" fill=\"#723f91\"><\/path><\/g><rect x=\"338\" y=\"118\" width=\"108\" height=\"4\" rx=\"2\" fill=\"#2f2c5c\" opacity=\"0.55\"><\/rect><rect x=\"338\" y=\"127\" width=\"80\" height=\"3\" rx=\"1.5\" fill=\"#2f2c5c\" opacity=\"0.28\"><\/rect><rect x=\"305\" y=\"144\" width=\"148\" height=\"3\" rx=\"1.5\" fill=\"#60b7c7\" opacity=\"0.4\"><\/rect><rect x=\"305\" y=\"152\" width=\"110\" height=\"3\" rx=\"1.5\" fill=\"#60b7c7\" opacity=\"0.25\"><\/rect><rect x=\"8\" y=\"170\" width=\"118\" height=\"42\" rx=\"8\" fill=\"white\" stroke=\"#60b7c7\" stroke-width=\"1.5\"><\/rect><text x=\"67\" y=\"188\" text-anchor=\"middle\" class=\"od-inline-2154aed55\">1 in 2,000<\/text><text x=\"67\" y=\"203\" text-anchor=\"middle\" class=\"od-inline-19d28b39a\">qualifies as rare<\/text><rect x=\"140\" y=\"170\" width=\"130\" height=\"42\" rx=\"8\" fill=\"white\" stroke=\"#723f91\" stroke-width=\"1.5\"><\/rect><text x=\"205\" y=\"188\" text-anchor=\"middle\" class=\"od-inline-f2ee8a52c\">7,000+<\/text><text x=\"205\" y=\"203\" text-anchor=\"middle\" class=\"od-inline-d6fec2c5d\">known rare diseases<\/text><\/svg>\n<\/div><div class=\"oxy-container-126-365 oxy-container od-education-block\"><header class=\"oxy-container-126-343 oxy-container od-education-challenges-heading\"><h3 class=\"oxy-text-126-341 oxy-text od-education-subtitle\">\nThe Challenges Patients Face\n<\/h3><p class=\"oxy-text-126-342 oxy-text od-education-plain-body\">\nLiving with a rare disease comes with unique challenges that can feel overwhelming. Understanding these challenges is the first step toward addressing them.\n<\/p><\/header><div class=\"oxy-container-126-364 oxy-container od-focus-science-grid\"><article class=\"oxy-container-126-348 oxy-container od-focus-science-card\"><header class=\"oxy-container-126-346 oxy-container od-focus-science-heading\"><span class=\"oxy-text-126-344 oxy-text od-focus-science-marker\" aria-hidden=\"true\">\n\n<\/span><h4 class=\"oxy-text-126-345 oxy-text od-focus-science-card-title\">\nLimited Information\n<\/h4><\/header><p class=\"oxy-text-126-347 oxy-text od-body-small\">\nBecause rare diseases affect so few people, there is often less information available about symptoms, progression and treatment options.\n<\/p><\/article><article class=\"oxy-container-126-353 oxy-container od-focus-science-card\"><header class=\"oxy-container-126-351 oxy-container od-focus-science-heading\"><span class=\"oxy-text-126-349 oxy-text od-focus-science-marker od-focus-marker--purple\" aria-hidden=\"true\">\n\n<\/span><h4 class=\"oxy-text-126-350 oxy-text od-focus-science-card-title\">\nDelayed Diagnosis\n<\/h4><\/header><p class=\"oxy-text-126-352 oxy-text od-body-small\">\nThe lack of awareness can lead to delayed or incorrect diagnoses, sometimes taking years before patients receive the right answers.\n<\/p><\/article><article class=\"oxy-container-126-358 oxy-container od-focus-science-card\"><header class=\"oxy-container-126-356 oxy-container od-focus-science-heading\"><span class=\"oxy-text-126-354 oxy-text od-focus-science-marker od-focus-marker--navy\" aria-hidden=\"true\">\n\n<\/span><h4 class=\"oxy-text-126-355 oxy-text od-focus-science-card-title\">\nLimited Treatment Options\n<\/h4><\/header><p class=\"oxy-text-126-357 oxy-text od-body-small\">\nMany rare diseases have inadequate or no approved treatments, leaving patients and families searching for solutions.\n<\/p><\/article><article class=\"oxy-container-126-363 oxy-container od-focus-science-card\"><header class=\"oxy-container-126-361 oxy-container od-focus-science-heading\"><span class=\"oxy-text-126-359 oxy-text od-focus-science-marker\" aria-hidden=\"true\">\n\n<\/span><h4 class=\"oxy-text-126-360 oxy-text od-focus-science-card-title\">\nUneven Access to Care\n<\/h4><\/header><p class=\"oxy-text-126-362 oxy-text od-body-small\">\nWhere treatments do exist, access can be inconsistent, varying by country, region or healthcare system.\n<\/p><\/article><\/div><\/div><div class=\"oxy-container-126-384 oxy-container od-education-block\"><div class=\"oxy-container-126-366 oxy-container od-section-marker od-marker--center\" aria-hidden=\"true\"><\/div><h3 class=\"oxy-text-126-367 oxy-text od-education-needs-title\">\nWhat the Rare Disease Community Needs\n<\/h3><div class=\"oxy-container-126-383 oxy-container od-education-needs-grid\"><article class=\"oxy-container-126-372 oxy-container od-education-need-card\"><div class=\"oxy-container-126-369 oxy-container od-education-need-icon\"><div class=\"oxy-svg-icon2-126-368 oxy-svg-icon2 od-education-symbol\">\n<svg aria-hidden=\"true\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewBox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"2\" stroke-linecap=\"round\" stroke-linejoin=\"round\"><path d=\"M6 18h8\"><\/path><path d=\"M3 22h18\"><\/path><path d=\"M14 22a7 7 0 1 0 0-14h-1\"><\/path><path d=\"M9 14h2\"><\/path><path d=\"M9 12a2 2 0 0 1-2-2V6h6v4a2 2 0 0 1-2 2Z\"><\/path><path d=\"M12 6V3a1 1 0 0 0-1-1H9a1 1 0 0 0-1 1v3\"><\/path><\/svg>\n<\/div><\/div><h4 class=\"oxy-text-126-370 oxy-text od-education-need-title\">\nMore Research\n<\/h4><p class=\"oxy-text-126-371 oxy-text od-body-small\">\nBetter understanding of rare diseases through scientific investigation and clinical studies\n<\/p><\/article><article class=\"oxy-container-126-377 oxy-container od-education-need-card\"><div class=\"oxy-container-126-374 oxy-container od-education-need-icon\"><div class=\"oxy-svg-icon2-126-373 oxy-svg-icon2 od-education-symbol\">\n<svg aria-hidden=\"true\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewBox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"2\" stroke-linecap=\"round\" stroke-linejoin=\"round\"><path d=\"M19 14c1.49-1.46 3-3.21 3-5.5A5.5 5.5 0 0 0 16.5 3c-1.76 0-3 .5-4.5 2-1.5-1.5-2.74-2-4.5-2A5.5 5.5 0 0 0 2 8.5c0 2.3 1.5 4.05 3 5.5l7 7Z\"><\/path><\/svg>\n<\/div><\/div><h4 class=\"oxy-text-126-375 oxy-text od-education-need-title\">\nBetter Therapies\n<\/h4><p class=\"oxy-text-126-376 oxy-text od-body-small\">\nDevelopment of effective treatments that improve quality of life and outcomes\n<\/p><\/article><article class=\"oxy-container-126-382 oxy-container od-education-need-card\"><div class=\"oxy-container-126-379 oxy-container od-education-need-icon\"><div class=\"oxy-svg-icon2-126-378 oxy-svg-icon2 od-education-symbol\">\n<svg aria-hidden=\"true\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewBox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"2\" stroke-linecap=\"round\" stroke-linejoin=\"round\"><circle cx=\"12\" cy=\"12\" r=\"10\"><\/circle><path d=\"M12 2a14.5 14.5 0 0 0 0 20 14.5 14.5 0 0 0 0-20\"><\/path><path d=\"M2 12h20\"><\/path><\/svg>\n<\/div><\/div><h4 class=\"oxy-text-126-380 oxy-text od-education-need-title\">\nGlobal Collaboration\n<\/h4><p class=\"oxy-text-126-381 oxy-text od-body-small\">\nA connected network of experts, researchers, clinicians and patient communities sharing knowledge\n<\/p><\/article><\/div><\/div><aside class=\"oxy-container-126-409 oxy-container od-education-difference\" aria-labelledby=\"education-difference-title\"><img decoding=\"async\" class=\"oxy-image-126-385 oxy-image od-education-difference-image\" src=\"https:\/\/funny-fermi.104-248-174-66.plesk.page\/wp-content\/uploads\/2026\/09\/Bubbles_1050_1.png\" alt=\"\" loading=\"lazy\" aria-hidden=\"true\"><div class=\"oxy-container-126-408 oxy-container od-education-difference-grid\"><div class=\"oxy-container-126-393 oxy-container od-education-difference-copy\"><div class=\"oxy-container-126-386 oxy-container od-section-marker\" aria-hidden=\"true\"><\/div><h3 class=\"oxy-text-126-387 oxy-text od-education-difference-title\" id=\"education-difference-title\">\nHow Orphalan Is Making a Difference\n<\/h3><p class=\"oxy-text-126-388 oxy-text od-education-difference-body\">\nAt Orphalan, we are committed to being part of the solution. We work with partners around the world to develop and deliver innovative treatments for patients living with rare diseases.\n<\/p><p class=\"oxy-text-126-389 oxy-text od-education-difference-body od-education-difference-body--last\">\nOur first commercialised product addresses Wilson's disease, a rare genetic condition affecting approximately 1 in 30,000 people globally. This is just the beginning of our commitment.\n<\/p><a class=\"oxy-container-link-126-392 oxy-container-link od-button od-home-control od-home-control--teal od-home-control--regular od-education-mission-link\" href=\"\/mission\/\" target=\"_self\"><span class=\"oxy-text-126-390 oxy-text od-link-label\">\nOur Mission\n<\/span><div class=\"oxy-svg-icon2-126-391 oxy-svg-icon2 od-link-icon od-education-action-arrow\">\n<svg aria-hidden=\"true\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewBox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"2\" stroke-linecap=\"round\" stroke-linejoin=\"round\"><path d=\"M5 12h14\"><\/path><path d=\"m12 5 7 7-7 7\"><\/path><\/svg>\n<\/div><\/a><\/div><div class=\"oxy-container-126-407 oxy-container od-education-stat-panel\"><div class=\"oxy-container-126-406 oxy-container od-education-stat-grid\"><a class=\"oxy-container-link-126-396 oxy-container-link od-education-stat-link\" href=\"\/our-presence\/\" target=\"_self\"><span class=\"oxy-text-126-394 oxy-text od-education-stat-value\">\n30+\n<\/span><span class=\"oxy-text-126-395 oxy-text od-education-stat-label\">\nCountries reached\n<\/span><\/a><a class=\"oxy-container-link-126-399 oxy-container-link od-education-stat-link\" href=\"\/therapeutic-areas\/\" target=\"_self\"><span class=\"oxy-text-126-397 oxy-text od-education-stat-value\">\n3\n<\/span><span class=\"oxy-text-126-398 oxy-text od-education-stat-label\">\nTherapeutic areas\n<\/span><\/a><a class=\"oxy-container-link-126-402 oxy-container-link od-education-stat-link\" href=\"\/products\/\" target=\"_self\"><span class=\"oxy-text-126-400 oxy-text od-education-stat-value\">\n3\n<\/span><span class=\"oxy-text-126-401 oxy-text od-education-stat-label\">\nProducts in portfolio\n<\/span><\/a><a class=\"oxy-container-link-126-405 oxy-container-link od-education-stat-link\" href=\"\/our-approach\/\" target=\"_self\"><span class=\"oxy-text-126-403 oxy-text od-education-stat-value\">\n1000s\n<\/span><span class=\"oxy-text-126-404 oxy-text od-education-stat-label\">\nPatients supported\n<\/span><\/a><\/div><\/div><\/div><\/aside><\/div><\/div><\/section><section class=\"oxy-container-126-443 oxy-container od-section od-education-resources\" aria-labelledby=\"education-resources-title\"><div class=\"oxy-container-126-442 oxy-container od-container\"><header class=\"oxy-container-126-416 oxy-container od-home-heading\"><div class=\"oxy-container-126-413 oxy-container od-section-marker od-marker--center\" aria-hidden=\"true\"><\/div><h2 class=\"oxy-text-126-414 oxy-text od-home-heading-title\" id=\"education-resources-title\">\nResources for Every Step of Your Journey\n<\/h2><p class=\"oxy-text-126-415 oxy-text od-home-heading-lead od-education-heading-lead--wide\">\nEach disease section provides comprehensive, easy-to-understand information to help you navigate your rare disease journey with confidence\n<\/p><\/header><div class=\"oxy-container-126-441 oxy-container od-education-resource-grid\"><article class=\"oxy-container-126-422 oxy-container od-education-resource-card\"><div class=\"oxy-container-126-418 oxy-container od-education-resource-icon\"><div class=\"oxy-svg-icon2-126-417 oxy-svg-icon2 od-education-symbol\">\n<svg aria-hidden=\"true\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewBox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"2\" stroke-linecap=\"round\" stroke-linejoin=\"round\"><path d=\"M12 7v14\"><\/path><path d=\"M3 18a1 1 0 0 1-1-1V4a1 1 0 0 1 1-1h5a4 4 0 0 1 4 4 4 4 0 0 1 4-4h5a1 1 0 0 1 1 1v13a1 1 0 0 1-1 1h-6a3 3 0 0 0-3 3 3 3 0 0 0-3-3z\"><\/path><\/svg>\n<\/div><\/div><div class=\"oxy-container-126-421 oxy-container od-education-resource-copy\"><h3 class=\"oxy-text-126-419 oxy-text od-education-resource-title\">\nUnderstanding the Condition\n<\/h3><p class=\"oxy-text-126-420 oxy-text od-education-resource-description\">\nComprehensive information about symptoms, diagnosis and progression\n<\/p><\/div><\/article><article class=\"oxy-container-126-428 oxy-container od-education-resource-card\"><div class=\"oxy-container-126-424 oxy-container od-education-resource-icon\"><div class=\"oxy-svg-icon2-126-423 oxy-svg-icon2 od-education-symbol\">\n<svg aria-hidden=\"true\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewBox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"2\" stroke-linecap=\"round\" stroke-linejoin=\"round\"><path d=\"M19 14c1.49-1.46 3-3.21 3-5.5A5.5 5.5 0 0 0 16.5 3c-1.76 0-3 .5-4.5 2-1.5-1.5-2.74-2-4.5-2A5.5 5.5 0 0 0 2 8.5c0 2.3 1.5 4.05 3 5.5l7 7Z\"><\/path><\/svg>\n<\/div><\/div><div class=\"oxy-container-126-427 oxy-container od-education-resource-copy\"><h3 class=\"oxy-text-126-425 oxy-text od-education-resource-title\">\nLiving with the Condition\n<\/h3><p class=\"oxy-text-126-426 oxy-text od-education-resource-description\">\nPractical guidance for patients and caregivers on daily management\n<\/p><\/div><\/article><article class=\"oxy-container-126-434 oxy-container od-education-resource-card\"><div class=\"oxy-container-126-430 oxy-container od-education-resource-icon\"><div class=\"oxy-svg-icon2-126-429 oxy-svg-icon2 od-education-symbol\">\n<svg aria-hidden=\"true\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewBox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"2\" stroke-linecap=\"round\" stroke-linejoin=\"round\"><path d=\"M16 21v-2a4 4 0 0 0-4-4H6a4 4 0 0 0-4 4v2\"><\/path><circle cx=\"9\" cy=\"7\" r=\"4\"><\/circle><path d=\"M22 21v-2a4 4 0 0 0-3-3.87\"><\/path><path d=\"M16 3.13a4 4 0 0 1 0 7.75\"><\/path><\/svg>\n<\/div><\/div><div class=\"oxy-container-126-433 oxy-container od-education-resource-copy\"><h3 class=\"oxy-text-126-431 oxy-text od-education-resource-title\">\nPatient Associations\n<\/h3><p class=\"oxy-text-126-432 oxy-text od-education-resource-description\">\nConnect with support groups and advocacy organisations worldwide\n<\/p><\/div><\/article><article class=\"oxy-container-126-440 oxy-container od-education-resource-card\"><div class=\"oxy-container-126-436 oxy-container od-education-resource-icon\"><div class=\"oxy-svg-icon2-126-435 oxy-svg-icon2 od-education-symbol\">\n<svg aria-hidden=\"true\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewBox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"2\" stroke-linecap=\"round\" stroke-linejoin=\"round\"><circle cx=\"12\" cy=\"12\" r=\"10\"><\/circle><path d=\"M12 2a14.5 14.5 0 0 0 0 20 14.5 14.5 0 0 0 0-20\"><\/path><path d=\"M2 12h20\"><\/path><\/svg>\n<\/div><\/div><div class=\"oxy-container-126-439 oxy-container od-education-resource-copy\"><h3 class=\"oxy-text-126-437 oxy-text od-education-resource-title\">\nTreatment Resources\n<\/h3><p class=\"oxy-text-126-438 oxy-text od-education-resource-description\">\nInformation about available treatments and clinical care\n<\/p><\/div><\/article><\/div><\/div><\/section><section class=\"oxy-container-126-477 oxy-container od-section\" aria-labelledby=\"education-conditions-title\"><div class=\"oxy-container-126-476 oxy-container od-container\"><header class=\"oxy-container-126-447 oxy-container od-home-heading\"><span class=\"oxy-text-126-444 oxy-text od-eyebrow\">\nWE CARE\n<\/span><h2 class=\"oxy-text-126-445 oxy-text od-home-heading-title\" id=\"education-conditions-title\">\nConditions We Serve\n<\/h2><p class=\"oxy-text-126-446 oxy-text od-home-heading-lead od-education-heading-lead--wide\">\nSelect a condition to learn more about the disease, treatment options and support resources\n<\/p><\/header><div class=\"oxy-container-126-475 oxy-container od-focus-area-grid\"><article class=\"oxy-container-126-456 oxy-container od-focus-area-card\"><div class=\"oxy-container-126-449 oxy-container od-focus-area-media\"><img decoding=\"async\" class=\"oxy-image-126-448 oxy-image od-focus-area-image\" src=\"https:\/\/funny-fermi.104-248-174-66.plesk.page\/wp-content\/uploads\/2026\/09\/pexels-C-1843358-scaled.jpg\" alt=\"Wilson&#039;s Disease\" loading=\"lazy\"><\/div><div class=\"oxy-container-126-455 oxy-container od-focus-area-copy\"><h3 class=\"oxy-text-126-450 oxy-text od-card-title\">\nWilson's Disease\n<\/h3><p class=\"oxy-text-126-451 oxy-text od-body od-focus-area-description\">\nA rare genetic disorder that causes copper to accumulate in the liver, brain and other vital organs\n<\/p><a class=\"oxy-container-link-126-454 oxy-container-link od-button od-home-control od-home-control--navy od-focus-area-action\" href=\"\/disease-info\/wilsons-disease\/\" target=\"_self\" aria-label=\"Learn more about Wilson&#039;s Disease\"><span class=\"oxy-text-126-452 oxy-text od-link-label\">\nLearn More\n<\/span><div class=\"oxy-svg-icon2-126-453 oxy-svg-icon2 od-link-icon od-focus-area-arrow\">\n<svg aria-hidden=\"true\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewBox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"2\" stroke-linecap=\"round\" stroke-linejoin=\"round\"><path d=\"M5 12h14\"><\/path><path d=\"m12 5 7 7-7 7\"><\/path><\/svg>\n<\/div><\/a><\/div><\/article><article class=\"oxy-container-126-465 oxy-container od-focus-area-card\"><div class=\"oxy-container-126-458 oxy-container od-focus-area-media\"><img decoding=\"async\" class=\"oxy-image-126-457 oxy-image od-focus-area-image\" src=\"https:\/\/funny-fermi.104-248-174-66.plesk.page\/wp-content\/uploads\/2026\/09\/Therapeutic_Portfolio_-_Kigabeq-1.jpeg\" alt=\"West&#039;s Syndrome\" loading=\"lazy\"><\/div><div class=\"oxy-container-126-464 oxy-container od-focus-area-copy\"><h3 class=\"oxy-text-126-459 oxy-text od-card-title\">\nWest's Syndrome\n<\/h3><p class=\"oxy-text-126-460 oxy-text od-body od-focus-area-description\">\nA rare epileptic disorder affecting infants, characterised by infantile spasms and developmental challenges\n<\/p><a class=\"oxy-container-link-126-463 oxy-container-link od-button od-home-control od-home-control--navy od-focus-area-action\" href=\"\/disease-info\/wests-syndrome\/\" target=\"_self\" aria-label=\"Learn more about West&#039;s Syndrome\"><span class=\"oxy-text-126-461 oxy-text od-link-label\">\nLearn More\n<\/span><div class=\"oxy-svg-icon2-126-462 oxy-svg-icon2 od-link-icon od-focus-area-arrow\">\n<svg aria-hidden=\"true\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewBox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"2\" stroke-linecap=\"round\" stroke-linejoin=\"round\"><path d=\"M5 12h14\"><\/path><path d=\"m12 5 7 7-7 7\"><\/path><\/svg>\n<\/div><\/a><\/div><\/article><article class=\"oxy-container-126-474 oxy-container od-focus-area-card\"><div class=\"oxy-container-126-467 oxy-container od-focus-area-media\"><img decoding=\"async\" class=\"oxy-image-126-466 oxy-image od-focus-area-image\" src=\"https:\/\/funny-fermi.104-248-174-66.plesk.page\/wp-content\/uploads\/2026\/09\/young-child-therapy-battling-cancer_de_gauche.jpg\" alt=\"Glioblastoma\" loading=\"lazy\"><\/div><div class=\"oxy-container-126-473 oxy-container od-focus-area-copy\"><h3 class=\"oxy-text-126-468 oxy-text od-card-title\">\nGlioblastoma\n<\/h3><p class=\"oxy-text-126-469 oxy-text od-body od-focus-area-description\">\nA fast-growing type of brain cancer and the most common form of aggressive brain cancer in adults.\n<\/p><a class=\"oxy-container-link-126-472 oxy-container-link od-button od-home-control od-home-control--navy od-focus-area-action\" href=\"\/disease-info\/glioblastoma\/\" target=\"_self\" aria-label=\"Learn more about Glioblastoma\"><span class=\"oxy-text-126-470 oxy-text od-link-label\">\nLearn More\n<\/span><div class=\"oxy-svg-icon2-126-471 oxy-svg-icon2 od-link-icon od-focus-area-arrow\">\n<svg aria-hidden=\"true\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewBox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"2\" stroke-linecap=\"round\" stroke-linejoin=\"round\"><path d=\"M5 12h14\"><\/path><path d=\"m12 5 7 7-7 7\"><\/path><\/svg>\n<\/div><\/a><\/div><\/article><\/div><\/div><\/section><section class=\"oxy-container-126-508 oxy-container od-section od-section--muted od-education-community\" aria-labelledby=\"education-community-title\"><div class=\"oxy-container-126-507 oxy-container od-container\"><header class=\"oxy-container-126-481 oxy-container od-home-heading\"><div class=\"oxy-container-126-478 oxy-container od-section-marker od-marker--center\" aria-hidden=\"true\"><\/div><h2 class=\"oxy-text-126-479 oxy-text od-section-title od-education-community-title\" data-interactions=\"[{&quot;trigger&quot;:&quot;page_loaded&quot;,&quot;actions&quot;:[{&quot;name&quot;:&quot;javascript_function&quot;,&quot;js_function_name&quot;:&quot;orphalanEducationInit&quot;}]}]\" id=\"education-community-title\">\nConnect with the Rare Disease Community\n<\/h2><p class=\"oxy-text-126-480 oxy-text od-education-community-lead\">\nSupport groups, global organisations and community networks are available so you do not have to navigate this journey alone.\n<\/p><\/header><div class=\"oxy-container-126-506 oxy-container od-education-community-grid\"><a class=\"oxy-container-link-126-489 oxy-container-link od-education-community-card\" href=\"\/patient-support-groups\/\" target=\"_self\" id=\"education-support-groups\"><div class=\"oxy-container-126-483 oxy-container od-education-community-icon\"><div class=\"oxy-svg-icon2-126-482 oxy-svg-icon2 od-education-symbol\">\n<svg aria-hidden=\"true\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewBox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"2\" stroke-linecap=\"round\" stroke-linejoin=\"round\"><path d=\"M19 14c1.49-1.46 3-3.21 3-5.5A5.5 5.5 0 0 0 16.5 3c-1.76 0-3 .5-4.5 2-1.5-1.5-2.74-2-4.5-2A5.5 5.5 0 0 0 2 8.5c0 2.3 1.5 4.05 3 5.5l7 7Z\"><\/path><path d=\"M12 5 9.04 7.96a2.17 2.17 0 0 0 0 3.08c.82.82 2.13.85 3 .07l2.07-1.9a2.82 2.82 0 0 1 3.79 0l2.96 2.66\"><\/path><path d=\"m18 15-2-2\"><\/path><path d=\"m15 18-2-2\"><\/path><\/svg>\n<\/div><\/div><h3 class=\"oxy-text-126-484 oxy-text od-education-community-card-title\">\nPatient Support Groups\n<\/h3><p class=\"oxy-text-126-485 oxy-text od-education-community-description\">\nFind specialised support groups for Wilson's disease, West's syndrome and other rare conditions in your country.\n<\/p><span class=\"oxy-container-126-488 oxy-container od-education-community-label\"><span class=\"oxy-text-126-486 oxy-text od-link-label\">\nExplore groups\n<\/span><div class=\"oxy-svg-icon2-126-487 oxy-svg-icon2 od-education-community-arrow\">\n<svg aria-hidden=\"true\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewBox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"2\" stroke-linecap=\"round\" stroke-linejoin=\"round\"><path d=\"M5 12h14\"><\/path><path d=\"m12 5 7 7-7 7\"><\/path><\/svg>\n<\/div><\/span><\/a><a class=\"oxy-container-link-126-497 oxy-container-link od-education-community-card\" href=\"https:\/\/www.eurordis.org\" target=\"_blank\" data-interactions=\"[{&quot;trigger&quot;:&quot;click&quot;,&quot;prevent_default&quot;:true,&quot;actions&quot;:[{&quot;name&quot;:&quot;javascript_function&quot;,&quot;js_function_name&quot;:&quot;orphalanEducationEurordis&quot;}]}]\" id=\"education-eurordis\" rel=\"noopener noreferrer\"><div class=\"oxy-container-126-491 oxy-container od-education-community-icon\"><div class=\"oxy-svg-icon2-126-490 oxy-svg-icon2 od-education-symbol\">\n<svg aria-hidden=\"true\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewBox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"2\" stroke-linecap=\"round\" stroke-linejoin=\"round\"><circle cx=\"12\" cy=\"12\" r=\"10\"><\/circle><path d=\"M12 2a14.5 14.5 0 0 0 0 20 14.5 14.5 0 0 0 0-20\"><\/path><path d=\"M2 12h20\"><\/path><\/svg>\n<\/div><\/div><h3 class=\"oxy-text-126-492 oxy-text od-education-community-card-title\">\nEURORDIS (Europe)\n<\/h3><p class=\"oxy-text-126-493 oxy-text od-education-community-description\">\nEuropean Organisation for Rare Diseases - a voice for rare disease patients across Europe.\n<\/p><span class=\"oxy-container-126-496 oxy-container od-education-community-label\"><span class=\"oxy-text-126-494 oxy-text od-link-label\">\nVisit website\n<\/span><div class=\"oxy-svg-icon2-126-495 oxy-svg-icon2 od-education-community-arrow\">\n<svg aria-hidden=\"true\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewBox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"2\" stroke-linecap=\"round\" stroke-linejoin=\"round\"><path d=\"M5 12h14\"><\/path><path d=\"m12 5 7 7-7 7\"><\/path><\/svg>\n<\/div><\/span><\/a><a class=\"oxy-container-link-126-505 oxy-container-link od-education-community-card\" href=\"https:\/\/rarediseases.org\" target=\"_blank\" data-interactions=\"[{&quot;trigger&quot;:&quot;click&quot;,&quot;prevent_default&quot;:true,&quot;actions&quot;:[{&quot;name&quot;:&quot;javascript_function&quot;,&quot;js_function_name&quot;:&quot;orphalanEducationNord&quot;}]}]\" id=\"education-nord\" rel=\"noopener noreferrer\"><div class=\"oxy-container-126-499 oxy-container od-education-community-icon\"><div class=\"oxy-svg-icon2-126-498 oxy-svg-icon2 od-education-symbol\">\n<svg aria-hidden=\"true\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewBox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"2\" stroke-linecap=\"round\" stroke-linejoin=\"round\"><circle cx=\"12\" cy=\"12\" r=\"10\"><\/circle><path d=\"M12 2a14.5 14.5 0 0 0 0 20 14.5 14.5 0 0 0 0-20\"><\/path><path d=\"M2 12h20\"><\/path><\/svg>\n<\/div><\/div><h3 class=\"oxy-text-126-500 oxy-text od-education-community-card-title\">\nNORD (USA)\n<\/h3><p class=\"oxy-text-126-501 oxy-text od-education-community-description\">\nNational Organisation for Rare Disorders - committed to the identification and treatment of rare diseases.\n<\/p><span class=\"oxy-container-126-504 oxy-container od-education-community-label\"><span class=\"oxy-text-126-502 oxy-text od-link-label\">\nVisit website\n<\/span><div class=\"oxy-svg-icon2-126-503 oxy-svg-icon2 od-education-community-arrow\">\n<svg aria-hidden=\"true\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewBox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"2\" stroke-linecap=\"round\" stroke-linejoin=\"round\"><path d=\"M5 12h14\"><\/path><path d=\"m12 5 7 7-7 7\"><\/path><\/svg>\n<\/div><\/span><\/a><\/div><\/div><\/section><aside class=\"oxy-container-126-516 oxy-container od-approval-strip\" aria-label=\"Content approval information\"><div class=\"oxy-container-126-515 oxy-container od-container\"><div class=\"oxy-container-126-514 oxy-container od-approval-layout\"><div class=\"oxy-container-126-512 oxy-container od-approval-code\"><span class=\"oxy-text-126-509 oxy-text od-approval-text\">\nMLR Approval Code: ORP-EU-2026-001\n<\/span><span class=\"oxy-text-126-510 oxy-text od-approval-text\" aria-hidden=\"true\">\n\u2022\n<\/span><span class=\"oxy-text-126-511 oxy-text od-approval-text\">\nApproved: October 2026\n<\/span><\/div><p class=\"oxy-text-126-513 oxy-text od-approval-text\">\nFor Healthcare Professionals and Patients in Europe and regions where Orphalan operates\n<\/p><\/div><\/div><\/aside><dialog class=\"oxy-container-126-527 oxy-container od-leader-dialog od-leader-external\" id=\"education-external\" aria-labelledby=\"education-external-title\" tabindex=\"-1\"><div class=\"oxy-container-126-518 oxy-container od-leader-external-icon\"><div class=\"oxy-svg-icon2-126-517 oxy-svg-icon2 od-leader-value-symbol\">\n<svg aria-hidden=\"true\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewBox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"2\" stroke-linecap=\"round\" stroke-linejoin=\"round\"><path d=\"M15 3h6v6\"><\/path><path d=\"M10 14 21 3\"><\/path><path d=\"M18 13v6a2 2 0 0 1-2 2H5a2 2 0 0 1-2-2V8a2 2 0 0 1 2-2h6\"><\/path><\/svg>\n<\/div><\/div><h2 class=\"oxy-text-126-519 oxy-text od-leader-external-title\" id=\"education-external-title\">\nYou are leaving orphalan.com\n<\/h2><p class=\"oxy-text-126-520 oxy-text od-body od-leader-external-body od-products-notice-message\" id=\"education-external-message-eurordis\">\nYou are about to visit <strong>EURORDIS<\/strong>, an external website. Orphalan is not responsible for the content of external sites.\n<\/p><p class=\"oxy-text-126-521 oxy-text od-body od-leader-external-body od-products-notice-message\" id=\"education-external-message-nord\" hidden=\"\">\nYou are about to visit <strong>NORD<\/strong>, an external website. Orphalan is not responsible for the content of external sites.\n<\/p><div class=\"oxy-container-126-524 oxy-container od-pipeline-external-actions\"><a class=\"oxy-text-link-126-522 oxy-text-link od-leader-external-visit od-pipeline-external-action\" href=\"https:\/\/www.eurordis.org\" target=\"_blank\" data-interactions=\"[{&quot;trigger&quot;:&quot;click&quot;,&quot;prevent_default&quot;:true,&quot;actions&quot;:[{&quot;name&quot;:&quot;javascript_function&quot;,&quot;js_function_name&quot;:&quot;orphalanEducationVisit&quot;}]}]\" id=\"education-external-visit\" rel=\"noopener noreferrer\">\nVisit Website\n<\/a><button class=\"oxy-text-link-126-523 oxy-text-link od-leader-external-stay od-pipeline-external-action\" target=\"_self\" data-interactions=\"[{&quot;trigger&quot;:&quot;click&quot;,&quot;prevent_default&quot;:true,&quot;actions&quot;:[{&quot;name&quot;:&quot;javascript_function&quot;,&quot;js_function_name&quot;:&quot;orphalanEducationClose&quot;}]}]\" id=\"education-external-stay\" type=\"button\">\nStay on orphalan.com\n<\/button><\/div><button class=\"oxy-container-link-126-526 oxy-container-link od-leader-close od-leader-close--external\" target=\"_self\" data-interactions=\"[{&quot;trigger&quot;:&quot;click&quot;,&quot;prevent_default&quot;:true,&quot;actions&quot;:[{&quot;name&quot;:&quot;javascript_function&quot;,&quot;js_function_name&quot;:&quot;orphalanEducationClose&quot;}]}]\" id=\"education-external-close\" type=\"button\" aria-label=\"Close external site notice\"><div class=\"oxy-svg-icon2-126-525 oxy-svg-icon2 od-leader-close-icon\">\n<svg aria-hidden=\"true\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewBox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"2\" stroke-linecap=\"round\" stroke-linejoin=\"round\"><path d=\"M18 6 6 18\"><\/path><path d=\"m6 6 12 12\"><\/path><\/svg>\n<\/div><\/button><\/dialog><\/div><\/div><\/main>","protected":false},"excerpt":{"rendered":"<p>For Patients and Caregivers This information is intended for patients and caregivers. Always consult with your healthcare provider about your specific medical condition and treatment options. Do not start, stop or change any treatment without first consulting your doctor. Rare Disease Education Understanding rare diseases and supporting patients Access educational resources, disease information and external [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_oxygen_hide_in_design_set":false,"_oxygen_tags":"","footnotes":""},"class_list":["post-126","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/funny-fermi.104-248-174-66.plesk.page\/fr\/wp-json\/wp\/v2\/pages\/126","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/funny-fermi.104-248-174-66.plesk.page\/fr\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/funny-fermi.104-248-174-66.plesk.page\/fr\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/funny-fermi.104-248-174-66.plesk.page\/fr\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/funny-fermi.104-248-174-66.plesk.page\/fr\/wp-json\/wp\/v2\/comments?post=126"}],"version-history":[{"count":25,"href":"https:\/\/funny-fermi.104-248-174-66.plesk.page\/fr\/wp-json\/wp\/v2\/pages\/126\/revisions"}],"predecessor-version":[{"id":1004,"href":"https:\/\/funny-fermi.104-248-174-66.plesk.page\/fr\/wp-json\/wp\/v2\/pages\/126\/revisions\/1004"}],"wp:attachment":[{"href":"https:\/\/funny-fermi.104-248-174-66.plesk.page\/fr\/wp-json\/wp\/v2\/media?parent=126"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}