{"id":166,"date":"2026-09-22T13:09:09","date_gmt":"2026-09-22T13:09:09","guid":{"rendered":"https:\/\/funny-fermi.104-248-174-66.plesk.page\/?page_id=166"},"modified":"2026-10-29T18:15:43","modified_gmt":"2026-10-29T18:15:43","slug":"wests-syndrome","status":"publish","type":"page","link":"https:\/\/funny-fermi.104-248-174-66.plesk.page\/fr\/disease-info\/wests-syndrome\/","title":{"rendered":"Wests Syndrome"},"content":{"rendered":"<main id='oxy-main'><div class=\"oxy-container-166-253 oxy-container od-page-disease-info-wests-syndrome\"><div class=\"oxy-container-166-252 oxy-container od-fx-793346c73\"><section class=\"oxy-container-166-266 oxy-container od-hero\" aria-labelledby=\"disease-title\"><div class=\"oxy-container-166-265 oxy-container od-container\"><div class=\"oxy-container-166-256 oxy-container od-hero-heading\"><div class=\"oxy-svg-icon2-166-254 oxy-svg-icon2 od-disease-hero-icon\">\n<svg aria-hidden=\"true\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewBox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"2\" stroke-linecap=\"round\" stroke-linejoin=\"round\"><path d=\"M9 12h.01\"><\/path><path d=\"M15 12h.01\"><\/path><path d=\"M10 16c.5.3 1.2.5 2 .5s1.5-.2 2-.5\"><\/path><path d=\"M19 6.3a9 9 0 0 1 1.8 3.9 2 2 0 0 1 0 3.6 9 9 0 0 1-17.6 0 2 2 0 0 1 0-3.6A9 9 0 0 1 12 3c2 0 3.5 1.1 3.5 2.5s-.9 2.5-2 2.5c-.8 0-1.5-.4-1.5-1\"><\/path><\/svg>\n<\/div><h1 class=\"oxy-text-166-255 oxy-text od-hero-title\" id=\"disease-title\">\nWest's Syndrome\n<\/h1><\/div><p class=\"oxy-text-166-257 oxy-text od-hero-lead od-disease-hero-lead\">\nIf your child has recently been diagnosed, support and information are available to help you and your family navigate next steps.\n<\/p><p class=\"oxy-text-166-258 oxy-text od-hero-copy od-disease-hero-copy\">\nWest's syndrome is a rare form of epilepsy that affects infants, typically between 3 and 12 months of age. A diagnosis can feel overwhelming, but with the right care and the right people by your side, many families find a path forward.\n<\/p><div class=\"oxy-container-166-261 oxy-container od-hero-actions\"><a class=\"oxy-text-link-166-259 oxy-text-link od-button od-button--accent od-button--borderless od-careers-hero-action\" href=\"\/patient-support-groups\/\" target=\"_self\">\nFind a Support Group\n<\/a><a class=\"oxy-text-link-166-260 oxy-text-link od-button od-button--outlined-light\" href=\"\/products\/\" target=\"_self\">\nView Our Products\n<\/a><\/div><button class=\"oxy-container-link-166-264 oxy-container-link od-hero-back\" target=\"_self\" data-interactions=\"[{&quot;trigger&quot;:&quot;click&quot;,&quot;prevent_default&quot;:true,&quot;actions&quot;:[{&quot;name&quot;:&quot;javascript_function&quot;,&quot;js_function_name&quot;:&quot;orphalanHeroBack&quot;}]}]\" id=\"disease-back\" type=\"button\" aria-label=\"Go back to the previous page\"><div class=\"oxy-svg-icon2-166-262 oxy-svg-icon2 od-hero-back-icon\">\n<svg aria-hidden=\"true\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewBox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"2\" stroke-linecap=\"round\" stroke-linejoin=\"round\"><path d=\"m15 18-6-6 6-6\"><\/path><\/svg>\n<\/div><span class=\"oxy-text-166-263 oxy-text od-link-label\">\nBack\n<\/span><\/button><\/div><\/section><aside class=\"oxy-container-166-270 oxy-container od-disease-notice\" aria-label=\"Audience information\"><div class=\"oxy-container-166-269 oxy-container od-container od-disease-notice-container\"><div class=\"oxy-svg-icon2-166-267 oxy-svg-icon2 od-disease-notice-icon\">\n<svg aria-hidden=\"true\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewBox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"2\" stroke-linecap=\"round\" stroke-linejoin=\"round\"><circle cx=\"12\" cy=\"12\" r=\"10\"><\/circle><line x1=\"12\" x2=\"12\" y1=\"8\" y2=\"12\"><\/line><line x1=\"12\" x2=\"12.01\" y1=\"16\" y2=\"16\"><\/line><\/svg>\n<\/div><p class=\"oxy-text-166-268 oxy-text od-disease-notice-copy\">\n<strong class=\"od-disease-notice-strong\">For patients, caregivers &amp; healthcare professionals.<\/strong> This page is intended for both families and clinicians. Patients and caregivers: the information here is not a substitute for your doctor's advice - always speak with your care team. Healthcare professionals: please refer to the full SmPC before prescribing.\n<\/p><\/div><\/aside><section class=\"oxy-container-166-286 oxy-container od-section od-disease-section\" aria-labelledby=\"disease-overview-title\"><div class=\"oxy-container-166-285 oxy-container od-container\"><div class=\"oxy-container-166-284 oxy-container od-disease-overview-grid\"><img decoding=\"async\" class=\"oxy-image-166-271 oxy-image od-disease-photo\" src=\"https:\/\/funny-fermi.104-248-174-66.plesk.page\/wp-content\/uploads\/2026\/09\/Therapeutic_Portfolio_-_Kigabeq.jpeg\" alt=\"Baby receiving gentle care from a doctor\" loading=\"lazy\"><div class=\"oxy-container-166-283 oxy-container od-disease-overview-copy\"><div class=\"oxy-container-166-272 oxy-container od-section-marker\" aria-hidden=\"true\"><\/div><h2 class=\"oxy-text-166-273 oxy-text od-section-title\" id=\"disease-overview-title\">\nWhat is West's Syndrome?\n<\/h2><div class=\"oxy-container-166-277 oxy-container od-disease-paragraphs\"><p class=\"oxy-text-166-274 oxy-text od-body od-iir-strong\">\nWest's syndrome - sometimes called infantile spasms - is a rare, serious form of epilepsy that begins in the first year of life. It is characterised by brief, repetitive muscle spasms, changes in brain activity seen on EEG and in many cases, a slowing or regression of development.\n<\/p><p class=\"oxy-text-166-275 oxy-text od-body od-iir-strong\">\nNo two children experience it the same way and it can have many different underlying causes - from genetic conditions to structural differences in the brain, to causes that cannot yet be identified.\n<\/p><p class=\"oxy-text-166-276 oxy-text od-body od-iir-strong\">\nWhat is consistent is this: <strong class=\"od-disease-notice-strong\">early recognition matters.<\/strong>\n<\/p><\/div><article class=\"oxy-container-166-282 oxy-container od-disease-urgent\"><div class=\"oxy-container-166-280 oxy-container od-disease-urgent-heading\"><div class=\"oxy-container-166-278 oxy-container od-safety-bar\" aria-hidden=\"true\"><\/div><h3 class=\"oxy-text-166-279 oxy-text od-disease-urgent-title\">\nWhen to Seek Urgent Help\n<\/h3><\/div><p class=\"oxy-text-166-281 oxy-text od-body-small od-disease-urgent-copy\">\nIf you are seeing sudden, repetitive jerking movements in your infant - especially in clusters shortly after waking - please contact your paediatrician or emergency services without delay. Early action makes a real difference.\n<\/p><\/article><\/div><\/div><\/div><\/section><section class=\"oxy-container-166-308 oxy-container od-section od-disease-section\" aria-labelledby=\"disease-symptoms-title\"><div class=\"oxy-container-166-307 oxy-container od-container\"><header class=\"oxy-container-166-290 oxy-container od-disease-heading\"><span class=\"oxy-text-166-287 oxy-text od-disease-badge\">\nSIGNS &amp; SYMPTOMS\n<\/span><h2 class=\"oxy-text-166-288 oxy-text od-disease-title\" id=\"disease-symptoms-title\">\nWhat to Look For\n<\/h2><p class=\"oxy-text-166-289 oxy-text od-disease-heading-copy\">\nAs a parent, trusting your instincts is important. These are the signs that warrant an urgent conversation with your doctor.\n<\/p><\/header><div class=\"oxy-container-166-306 oxy-container od-disease-symptoms-grid\"><article class=\"oxy-container-166-295 oxy-container od-disease-card\"><div class=\"oxy-container-166-292 oxy-container od-disease-card-icon\"><div class=\"oxy-svg-icon2-166-291 oxy-svg-icon2 od-registry-pillar-symbol\">\n<svg aria-hidden=\"true\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewBox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"2\" stroke-linecap=\"round\" stroke-linejoin=\"round\"><path d=\"M4 14a1 1 0 0 1-.78-1.63l9.9-10.2a.5.5 0 0 1 .86.46l-1.92 6.02A1 1 0 0 0 13 10h7a1 1 0 0 1 .78 1.63l-9.9 10.2a.5.5 0 0 1-.86-.46l1.92-6.02A1 1 0 0 0 11 14z\"><\/path><\/svg>\n<\/div><\/div><h3 class=\"oxy-text-166-293 oxy-text od-card-title\">\nInfantile Spasms\n<\/h3><p class=\"oxy-text-166-294 oxy-text od-body-small\">\nSudden, brief jerking or stiffening movements - often of the head, arms and legs together. These typically occur in clusters of 5\u201310 episodes and are most common just after your baby wakes up.\n<\/p><\/article><article class=\"oxy-container-166-300 oxy-container od-disease-card\"><div class=\"oxy-container-166-297 oxy-container od-disease-card-icon\"><div class=\"oxy-svg-icon2-166-296 oxy-svg-icon2 od-registry-pillar-symbol\">\n<svg aria-hidden=\"true\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewBox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"2\" stroke-linecap=\"round\" stroke-linejoin=\"round\"><polyline points=\"22 17 13.5 8.5 8.5 13.5 2 7\"><\/polyline><polyline points=\"16 17 22 17 22 11\"><\/polyline><\/svg>\n<\/div><\/div><h3 class=\"oxy-text-166-298 oxy-text od-card-title\">\nChanges in Development\n<\/h3><p class=\"oxy-text-166-299 oxy-text od-body-small\">\nYou may notice your baby seems less responsive, has stopped smiling or appears to have lost skills they had recently gained. This regression is one of the defining features of West's syndrome.\n<\/p><\/article><article class=\"oxy-container-166-305 oxy-container od-disease-card\"><div class=\"oxy-container-166-302 oxy-container od-disease-card-icon\"><div class=\"oxy-svg-icon2-166-301 oxy-svg-icon2 od-registry-pillar-symbol\">\n<svg aria-hidden=\"true\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewBox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"2\" stroke-linecap=\"round\" stroke-linejoin=\"round\"><path d=\"M2.062 12.348a1 1 0 0 1 0-.696 10.75 10.75 0 0 1 19.876 0 1 1 0 0 1 0 .696 10.75 10.75 0 0 1-19.876 0\"><\/path><circle cx=\"12\" cy=\"12\" r=\"3\"><\/circle><\/svg>\n<\/div><\/div><h3 class=\"oxy-text-166-303 oxy-text od-card-title\">\nUnusual Stillness or Blank Staring\n<\/h3><p class=\"oxy-text-166-304 oxy-text od-body-small\">\nBetween or around spasm episodes, your baby may seem to suddenly go very still, stare blankly or appear briefly unresponsive. These moments can be easy to miss or dismiss, but are worth noting and reporting to your doctor.\n<\/p><\/article><\/div><\/div><\/section><section class=\"oxy-container-166-328 oxy-container od-section od-disease-section od-disease-muted\" aria-labelledby=\"disease-treatment-title\"><div class=\"oxy-container-166-327 oxy-container od-container\"><header class=\"oxy-container-166-312 oxy-container od-disease-heading\"><div class=\"oxy-container-166-309 oxy-container od-section-marker\" aria-hidden=\"true\"><\/div><h2 class=\"oxy-text-166-310 oxy-text od-disease-title\" id=\"disease-treatment-title\">\nThere Are Treatments That Can Help\n<\/h2><p class=\"oxy-text-166-311 oxy-text od-disease-heading-copy\">\nWest's syndrome is challenging to treat, but there are established therapies. Your child's neurologist will work with you to find the right approach.\n<\/p><\/header><div class=\"oxy-container-166-326 oxy-container od-disease-treatment-grid\"><article class=\"oxy-container-166-319 oxy-container od-disease-card\"><div class=\"oxy-container-166-314 oxy-container od-disease-card-icon od-disease-card-icon--teal\"><div class=\"oxy-svg-icon2-166-313 oxy-svg-icon2 od-registry-pillar-symbol\">\n<svg aria-hidden=\"true\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewBox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"2\" stroke-linecap=\"round\" stroke-linejoin=\"round\"><path d=\"M11 2v2\"><\/path><path d=\"M5 2v2\"><\/path><path d=\"M5 3H4a2 2 0 0 0-2 2v4a6 6 0 0 0 12 0V5a2 2 0 0 0-2-2h-1\"><\/path><path d=\"M8 15a6 6 0 0 0 12 0v-3\"><\/path><circle cx=\"20\" cy=\"10\" r=\"2\"><\/circle><\/svg>\n<\/div><\/div><h3 class=\"oxy-text-166-315 oxy-text od-card-title od-disease-treatment-title\">\nFirst-Line Treatments\n<\/h3><p class=\"oxy-text-166-316 oxy-text od-body-small od-iir-strong od-disease-treatment-copy\">\n<strong>Vigabatrin (Kigabeq\u00ae)<\/strong> is an antiepileptic medication specifically indicated for infantile spasms. It works by increasing the brain's natural inhibitory signals (GABA) and is particularly effective when West's syndrome is caused by tuberous sclerosis. Regular eye monitoring is required during treatment.\n<\/p><p class=\"oxy-text-166-317 oxy-text od-body-small od-iir-strong od-disease-treatment-last\">\n<strong>ACTH (hormone therapy)<\/strong> is another well-established option, administered by injection and often highly effective at stopping spasms. It is usually started in hospital so your child can be closely monitored.\n<\/p><a class=\"oxy-text-link-166-318 oxy-text-link od-button od-home-control od-home-control--navy od-home-control--regular od-disease-full-button\" href=\"\/products\/#kigabeq\" target=\"_self\">\nLearn More About Kigabeq\u00ae\n<\/a><\/article><article class=\"oxy-container-166-325 oxy-container od-disease-card\"><div class=\"oxy-container-166-321 oxy-container od-disease-card-icon od-disease-card-icon--teal\"><div class=\"oxy-svg-icon2-166-320 oxy-svg-icon2 od-registry-pillar-symbol\">\n<svg aria-hidden=\"true\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewBox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"2\" stroke-linecap=\"round\" stroke-linejoin=\"round\"><path d=\"M19 14c1.49-1.46 3-3.21 3-5.5A5.5 5.5 0 0 0 16.5 3c-1.76 0-3 .5-4.5 2-1.5-1.5-2.74-2-4.5-2A5.5 5.5 0 0 0 2 8.5c0 2.3 1.5 4.05 3 5.5l7 7Z\"><\/path><\/svg>\n<\/div><\/div><h3 class=\"oxy-text-166-322 oxy-text od-card-title od-disease-treatment-title\">\nWider Support for Your Child\n<\/h3><p class=\"oxy-text-166-323 oxy-text od-body-small od-iir-strong od-disease-treatment-copy\">\nMedication is one part of the picture. Many families find that early intervention services - physical therapy, occupational therapy and speech therapy - play a vital role in supporting their child's development alongside medical treatment.\n<\/p><p class=\"oxy-text-166-324 oxy-text od-body-small od-iir-strong\">\nYour care team can connect you with the right services. A multidisciplinary approach, with neurologists, developmental specialists and therapists working together, gives children the broadest possible support.\n<\/p><\/article><\/div><\/div><\/section><section class=\"oxy-container-166-366 oxy-container od-section od-disease-section od-disease-support\" aria-labelledby=\"disease-support-title\"><div class=\"oxy-container-166-365 oxy-container od-container\"><img decoding=\"async\" class=\"oxy-image-166-329 oxy-image od-disease-support-image od-disease-support-image--wests\" src=\"https:\/\/funny-fermi.104-248-174-66.plesk.page\/wp-content\/uploads\/2026\/09\/Orphalan_Corporate_9-768x563__1_.jpg\" alt=\"\" loading=\"lazy\"><div class=\"oxy-container-166-330 oxy-container od-disease-support-shade\" aria-hidden=\"true\"><\/div><div class=\"oxy-container-166-364 oxy-container od-disease-support-content\"><header class=\"oxy-container-166-334 oxy-container od-disease-heading od-disease-heading--light\"><div class=\"oxy-container-166-331 oxy-container od-section-marker\" aria-hidden=\"true\"><\/div><h2 class=\"oxy-text-166-332 oxy-text od-disease-title\" id=\"disease-support-title\">\nPatient Support and Community\n<\/h2><p class=\"oxy-text-166-333 oxy-text od-disease-heading-copy\">\nPatient associations and support groups are available for families of children living with West's syndrome. These organisations provide information and may offer opportunities to connect with others who have experience of the condition.\n<\/p><\/header><div class=\"oxy-container-166-359 oxy-container od-disease-associations\"><article class=\"oxy-container-166-340 oxy-container od-disease-association\"><h3 class=\"oxy-text-166-335 oxy-text od-disease-association-title\">\nInfantile Spasms Action Network (ISAN)\n<\/h3><p class=\"oxy-text-166-336 oxy-text od-body-small od-disease-association-copy\">\nFamilies helping families - a community built by parents who truly understand what you are going through\n<\/p><a class=\"oxy-container-link-166-339 oxy-container-link od-disease-association-link\" href=\"https:\/\/www.infantilespasms.org\" target=\"_blank\" data-interactions=\"[{&quot;trigger&quot;:&quot;click&quot;,&quot;prevent_default&quot;:true,&quot;actions&quot;:[{&quot;name&quot;:&quot;javascript_function&quot;,&quot;js_function_name&quot;:&quot;orphalanDiseaseVisit1&quot;}]}]\" id=\"disease-association-1\" data-org-name=\"Infantile Spasms Action Network (ISAN)\" rel=\"noopener noreferrer\"><span class=\"oxy-text-166-337 oxy-text od-link-label\">\nVisit Website\n<\/span><div class=\"oxy-svg-icon2-166-338 oxy-svg-icon2 od-disease-external-icon\">\n<svg aria-hidden=\"true\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewBox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"2\" stroke-linecap=\"round\" stroke-linejoin=\"round\"><path d=\"M15 3h6v6\"><\/path><path d=\"M10 14 21 3\"><\/path><path d=\"M18 13v6a2 2 0 0 1-2 2H5a2 2 0 0 1-2-2V8a2 2 0 0 1 2-2h6\"><\/path><\/svg>\n<\/div><\/a><\/article><article class=\"oxy-container-166-346 oxy-container od-disease-association\"><h3 class=\"oxy-text-166-341 oxy-text od-disease-association-title\">\nEpilepsy Foundation\n<\/h3><p class=\"oxy-text-166-342 oxy-text od-body-small od-disease-association-copy\">\nA trusted source of support, information and connection for families living with epilepsy\n<\/p><a class=\"oxy-container-link-166-345 oxy-container-link od-disease-association-link\" href=\"https:\/\/www.epilepsy.com\" target=\"_blank\" data-interactions=\"[{&quot;trigger&quot;:&quot;click&quot;,&quot;prevent_default&quot;:true,&quot;actions&quot;:[{&quot;name&quot;:&quot;javascript_function&quot;,&quot;js_function_name&quot;:&quot;orphalanDiseaseVisit2&quot;}]}]\" id=\"disease-association-2\" data-org-name=\"Epilepsy Foundation\" rel=\"noopener noreferrer\"><span class=\"oxy-text-166-343 oxy-text od-link-label\">\nVisit Website\n<\/span><div class=\"oxy-svg-icon2-166-344 oxy-svg-icon2 od-disease-external-icon\">\n<svg aria-hidden=\"true\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewBox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"2\" stroke-linecap=\"round\" stroke-linejoin=\"round\"><path d=\"M15 3h6v6\"><\/path><path d=\"M10 14 21 3\"><\/path><path d=\"M18 13v6a2 2 0 0 1-2 2H5a2 2 0 0 1-2-2V8a2 2 0 0 1 2-2h6\"><\/path><\/svg>\n<\/div><\/a><\/article><article class=\"oxy-container-166-352 oxy-container od-disease-association\"><h3 class=\"oxy-text-166-347 oxy-text od-disease-association-title\">\nChild Neurology Foundation\n<\/h3><p class=\"oxy-text-166-348 oxy-text od-body-small od-disease-association-copy\">\nConnecting families with specialists, resources and a community that cares\n<\/p><a class=\"oxy-container-link-166-351 oxy-container-link od-disease-association-link\" href=\"https:\/\/www.childneurologyfoundation.org\" target=\"_blank\" data-interactions=\"[{&quot;trigger&quot;:&quot;click&quot;,&quot;prevent_default&quot;:true,&quot;actions&quot;:[{&quot;name&quot;:&quot;javascript_function&quot;,&quot;js_function_name&quot;:&quot;orphalanDiseaseVisit3&quot;}]}]\" id=\"disease-association-3\" data-org-name=\"Child Neurology Foundation\" rel=\"noopener noreferrer\"><span class=\"oxy-text-166-349 oxy-text od-link-label\">\nVisit Website\n<\/span><div class=\"oxy-svg-icon2-166-350 oxy-svg-icon2 od-disease-external-icon\">\n<svg aria-hidden=\"true\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewBox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"2\" stroke-linecap=\"round\" stroke-linejoin=\"round\"><path d=\"M15 3h6v6\"><\/path><path d=\"M10 14 21 3\"><\/path><path d=\"M18 13v6a2 2 0 0 1-2 2H5a2 2 0 0 1-2-2V8a2 2 0 0 1 2-2h6\"><\/path><\/svg>\n<\/div><\/a><\/article><article class=\"oxy-container-166-358 oxy-container od-disease-association\"><h3 class=\"oxy-text-166-353 oxy-text od-disease-association-title\">\nEuropean Paediatric Neurology Society (EPNS)\n<\/h3><p class=\"oxy-text-166-354 oxy-text od-body-small od-disease-association-copy\">\nAdvancing the best possible care for children with neurological conditions across Europe\n<\/p><a class=\"oxy-container-link-166-357 oxy-container-link od-disease-association-link\" href=\"https:\/\/www.epns.info\" target=\"_blank\" data-interactions=\"[{&quot;trigger&quot;:&quot;click&quot;,&quot;prevent_default&quot;:true,&quot;actions&quot;:[{&quot;name&quot;:&quot;javascript_function&quot;,&quot;js_function_name&quot;:&quot;orphalanDiseaseVisit4&quot;}]}]\" id=\"disease-association-4\" data-org-name=\"European Paediatric Neurology Society (EPNS)\" rel=\"noopener noreferrer\"><span class=\"oxy-text-166-355 oxy-text od-link-label\">\nVisit Website\n<\/span><div class=\"oxy-svg-icon2-166-356 oxy-svg-icon2 od-disease-external-icon\">\n<svg aria-hidden=\"true\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewBox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"2\" stroke-linecap=\"round\" stroke-linejoin=\"round\"><path d=\"M15 3h6v6\"><\/path><path d=\"M10 14 21 3\"><\/path><path d=\"M18 13v6a2 2 0 0 1-2 2H5a2 2 0 0 1-2-2V8a2 2 0 0 1 2-2h6\"><\/path><\/svg>\n<\/div><\/a><\/article><\/div><div class=\"oxy-container-166-363 oxy-container od-disease-support-footer\"><a class=\"oxy-container-link-166-362 oxy-container-link od-partner-banner-link\" href=\"\/patient-support-groups\/\" target=\"_self\"><span class=\"oxy-text-166-360 oxy-text od-link-label\">\nBrowse all patient support groups\n<\/span><div class=\"oxy-svg-icon2-166-361 oxy-svg-icon2 od-partner-banner-arrow\">\n<svg aria-hidden=\"true\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"14\" height=\"14\" viewBox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"2\" stroke-linecap=\"round\" stroke-linejoin=\"round\"><path d=\"M5 12h14\"><\/path><path d=\"m12 5 7 7-7 7\"><\/path><\/svg>\n<\/div><\/a><\/div><\/div><\/div><\/section><section class=\"oxy-container-166-394 oxy-container od-section od-disease-section\" aria-labelledby=\"disease-steps-title\"><div class=\"oxy-container-166-393 oxy-container od-container\"><div class=\"oxy-container-166-392 oxy-container od-disease-steps-inner\"><header class=\"oxy-container-166-370 oxy-container od-disease-heading od-disease-heading--steps\"><div class=\"oxy-container-166-367 oxy-container od-section-marker\" aria-hidden=\"true\"><\/div><h2 class=\"oxy-text-166-368 oxy-text od-disease-title\" id=\"disease-steps-title\">\nWhat Happens Next\n<\/h2><p class=\"oxy-text-166-369 oxy-text od-disease-heading-copy\">\nAfter a diagnosis, the path forward can feel uncertain. Here are some gentle steps that tend to help.\n<\/p><\/header><ol class=\"oxy-container-166-391 oxy-container od-disease-steps\"><li class=\"oxy-container-166-375 oxy-container od-disease-step\"><span class=\"oxy-text-166-371 oxy-text od-disease-step-number\" aria-hidden=\"true\">\n01\n<\/span><div class=\"oxy-container-166-374 oxy-container od-disease-step-copy\"><h3 class=\"oxy-text-166-372 oxy-text od-disease-step-title\">\nLean on your care team\n<\/h3><p class=\"oxy-text-166-373 oxy-text od-body\">\nYour neurologist and paediatrician are your most important allies. Don't hesitate to ask questions - no question is too small and understanding your child's condition helps you feel more in control.\n<\/p><\/div><\/li><li class=\"oxy-container-166-380 oxy-container od-disease-step\"><span class=\"oxy-text-166-376 oxy-text od-disease-step-number od-disease-step-number--purple\" aria-hidden=\"true\">\n02\n<\/span><div class=\"oxy-container-166-379 oxy-container od-disease-step-copy\"><h3 class=\"oxy-text-166-377 oxy-text od-disease-step-title\">\nKeep a simple record\n<\/h3><p class=\"oxy-text-166-378 oxy-text od-body\">\nA brief note of when spasms occur, how long they last and what they look like helps your doctor track progress and adjust treatment. A short video can also be invaluable at appointments.\n<\/p><\/div><\/li><li class=\"oxy-container-166-385 oxy-container od-disease-step\"><span class=\"oxy-text-166-381 oxy-text od-disease-step-number\" aria-hidden=\"true\">\n03\n<\/span><div class=\"oxy-container-166-384 oxy-container od-disease-step-copy\"><h3 class=\"oxy-text-166-382 oxy-text od-disease-step-title\">\nConnect with other families\n<\/h3><p class=\"oxy-text-166-383 oxy-text od-body\">\nParents who have been through this understand in ways others cannot. Support groups - online or in person - can offer comfort, practical advice and the reassurance that others have found a way through.\n<\/p><\/div><\/li><li class=\"oxy-container-166-390 oxy-container od-disease-step\"><span class=\"oxy-text-166-386 oxy-text od-disease-step-number od-disease-step-number--purple\" aria-hidden=\"true\">\n04\n<\/span><div class=\"oxy-container-166-389 oxy-container od-disease-step-copy\"><h3 class=\"oxy-text-166-387 oxy-text od-disease-step-title\">\nTake care of yourself too\n<\/h3><p class=\"oxy-text-166-388 oxy-text od-body\">\nYou cannot pour from an empty cup. Seeking help, whether from family, counselling or respite care, is not a sign of weakness - it is how you stay strong for your child.\n<\/p><\/div><\/li><\/ol><\/div><\/div><\/section><section class=\"oxy-container-166-402 oxy-container od-section od-disease-section od-disease-cta\" aria-labelledby=\"disease-cta-title\"><div class=\"oxy-container-166-401 oxy-container od-container\"><div class=\"oxy-container-166-395 oxy-container od-section-marker\" aria-hidden=\"true\"><\/div><h2 class=\"oxy-text-166-396 oxy-text od-disease-cta-title\" id=\"disease-cta-title\">\nWe Are Here to Help\n<\/h2><p class=\"oxy-text-166-397 oxy-text od-disease-cta-copy\">\nWhether you are a parent looking for answers or a clinician seeking information, our team is ready to support you.\n<\/p><div class=\"oxy-container-166-400 oxy-container od-disease-cta-actions\"><a class=\"oxy-text-link-166-398 oxy-text-link od-disease-cta-primary\" href=\"\/our-approach\/\" target=\"_self\">\nPatient-Centric Approach\n<\/a><a class=\"oxy-text-link-166-399 oxy-text-link od-disease-cta-secondary\" href=\"\/contact\/\" target=\"_self\">\nContact Our Team\n<\/a><\/div><\/div><\/section><aside class=\"oxy-container-166-410 oxy-container od-approval-strip\" aria-label=\"Content approval information\"><div class=\"oxy-container-166-409 oxy-container od-container\"><div class=\"oxy-container-166-408 oxy-container od-approval-layout\"><div class=\"oxy-container-166-406 oxy-container od-approval-code\"><span class=\"oxy-text-166-403 oxy-text od-approval-text\">\nMLR Approval Code: ORP-EU-2026-001\n<\/span><span class=\"oxy-text-166-404 oxy-text od-approval-text\" aria-hidden=\"true\">\n\u2022\n<\/span><span class=\"oxy-text-166-405 oxy-text od-approval-text\">\nApproved: October 2026\n<\/span><\/div><p class=\"oxy-text-166-407 oxy-text od-approval-text\">\nFor Healthcare Professionals and Patients in Europe and regions where Orphalan operates\n<\/p><\/div><\/div><\/aside><dialog class=\"oxy-container-166-420 oxy-container od-leader-dialog od-leader-external\" data-interactions=\"[{&quot;trigger&quot;:&quot;page_loaded&quot;,&quot;actions&quot;:[{&quot;name&quot;:&quot;javascript_function&quot;,&quot;js_function_name&quot;:&quot;orphalanDiseaseInit&quot;}]}]\" id=\"disease-external\" aria-labelledby=\"disease-external-title\" tabindex=\"-1\"><div class=\"oxy-container-166-412 oxy-container od-leader-external-icon\"><div class=\"oxy-svg-icon2-166-411 oxy-svg-icon2 od-leader-value-symbol\">\n<svg aria-hidden=\"true\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewBox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"2\" stroke-linecap=\"round\" stroke-linejoin=\"round\"><path d=\"M15 3h6v6\"><\/path><path d=\"M10 14 21 3\"><\/path><path d=\"M18 13v6a2 2 0 0 1-2 2H5a2 2 0 0 1-2-2V8a2 2 0 0 1 2-2h6\"><\/path><\/svg>\n<\/div><\/div><h2 class=\"oxy-text-166-413 oxy-text od-leader-external-title\" id=\"disease-external-title\">\nYou are leaving orphalan.com\n<\/h2><p class=\"oxy-text-166-414 oxy-text od-body od-leader-external-body\">\nYou are about to visit <strong class=\"od-disease-external-name\" id=\"disease-external-name\">Infantile Spasms Action Network (ISAN)<\/strong>, an external website. Orphalan is not responsible for the content of external sites.\n<\/p><div class=\"oxy-container-166-417 oxy-container od-pipeline-external-actions\"><a class=\"oxy-text-link-166-415 oxy-text-link od-leader-external-visit od-pipeline-external-action\" href=\"https:\/\/www.infantilespasms.org\" target=\"_blank\" data-interactions=\"[{&quot;trigger&quot;:&quot;click&quot;,&quot;prevent_default&quot;:true,&quot;actions&quot;:[{&quot;name&quot;:&quot;javascript_function&quot;,&quot;js_function_name&quot;:&quot;orphalanDiseaseConfirm&quot;}]}]\" id=\"disease-external-visit\" rel=\"noopener noreferrer\">\nVisit Website\n<\/a><button class=\"oxy-text-link-166-416 oxy-text-link od-leader-external-stay od-pipeline-external-action\" target=\"_self\" data-interactions=\"[{&quot;trigger&quot;:&quot;click&quot;,&quot;prevent_default&quot;:true,&quot;actions&quot;:[{&quot;name&quot;:&quot;javascript_function&quot;,&quot;js_function_name&quot;:&quot;orphalanDiseaseClose&quot;}]}]\" id=\"disease-external-stay\" type=\"button\">\nStay on orphalan.com\n<\/button><\/div><button class=\"oxy-container-link-166-419 oxy-container-link od-leader-close od-leader-close--external\" target=\"_self\" data-interactions=\"[{&quot;trigger&quot;:&quot;click&quot;,&quot;prevent_default&quot;:true,&quot;actions&quot;:[{&quot;name&quot;:&quot;javascript_function&quot;,&quot;js_function_name&quot;:&quot;orphalanDiseaseClose&quot;}]}]\" id=\"disease-external-close\" type=\"button\" aria-label=\"Close external site notice\"><div class=\"oxy-svg-icon2-166-418 oxy-svg-icon2 od-leader-close-icon\">\n<svg aria-hidden=\"true\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewBox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"2\" stroke-linecap=\"round\" stroke-linejoin=\"round\"><path d=\"M18 6 6 18\"><\/path><path d=\"m6 6 12 12\"><\/path><\/svg>\n<\/div><\/button><\/dialog><\/div><\/div><\/main>","protected":false},"excerpt":{"rendered":"<p>West&#8217;s Syndrome If your child has recently been diagnosed, support and information are available to help you and your family navigate next steps. West&#8217;s syndrome is a rare form of epilepsy that affects infants, typically between 3 and 12 months of age. A diagnosis can feel overwhelming, but with the right care and the right [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":126,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_oxygen_hide_in_design_set":false,"_oxygen_tags":"","footnotes":""},"class_list":["post-166","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/funny-fermi.104-248-174-66.plesk.page\/fr\/wp-json\/wp\/v2\/pages\/166","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/funny-fermi.104-248-174-66.plesk.page\/fr\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/funny-fermi.104-248-174-66.plesk.page\/fr\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/funny-fermi.104-248-174-66.plesk.page\/fr\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/funny-fermi.104-248-174-66.plesk.page\/fr\/wp-json\/wp\/v2\/comments?post=166"}],"version-history":[{"count":28,"href":"https:\/\/funny-fermi.104-248-174-66.plesk.page\/fr\/wp-json\/wp\/v2\/pages\/166\/revisions"}],"predecessor-version":[{"id":839,"href":"https:\/\/funny-fermi.104-248-174-66.plesk.page\/fr\/wp-json\/wp\/v2\/pages\/166\/revisions\/839"}],"up":[{"embeddable":true,"href":"https:\/\/funny-fermi.104-248-174-66.plesk.page\/fr\/wp-json\/wp\/v2\/pages\/126"}],"wp:attachment":[{"href":"https:\/\/funny-fermi.104-248-174-66.plesk.page\/fr\/wp-json\/wp\/v2\/media?parent=166"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}